Update from Jules
Thank you also for your offers of help. I am doing okay, mustering up strength (not sure where from) and that keeps me going, determined to do the best I can for both he and Isla throughout this time. Isla is also doing well and loving school where she is following in her dad's footsteps of becoming a voracious reader (jumping from level 1 to level 18 in her first assessment - most kids are still level 1). Her parents are super proud, no one more so than her daddy. She sits with him some nights when he is up and reads him her reader.
Forgive me for not responding to you all individually, but consider this a warm thank you from me and all the Haines family.