Paul Haines ([info]paulhaines) wrote,
@ 2008-07-22 16:24:00
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Current music:Underworld "Underneath The Radar" (1988)
Entry tags:cancer, the road forward

Guns Reloading
While sheltering in a battered waiting room, bullets whistling past my ears, I pause to breathe and reload.  My oncologist is blowing a bugle, not quite the cavalry, but, fuck, at least he's on a horse and he's reaching out his arm to pull me up.

Unlike your over-worked, stressed GP who is always looking at his watch to see if you've hit your fifteen minute limit for an appointment, the over-worked, stressed oncologist takes as long as it takes with you. There are no hypochondriacs here.

He lays down the battle plan for forty-five minutes.

And here's how we attack:

He still wants to wait a couple of months (ideally he wants even more than that) to see how the cancer in my liver is behaving. He also understands our fear, our need, to not be sitting around waiting to do nothing. So in those couple of months we will try the other two forms of chemotherapy for cancers like I have and to combine that with a monoclonal antibody called Avastin. Chemo fights the tumour, the antibody fights the blood vessels feeding the tumour. Unfortunately, Avastin is not part of Medicare or the private health system's funding at this stage, so we're having to come up with $20,000 to do it. Our parents have said they will help us here, which is a great relief.

After a couple of months I get another CT scan. What do we want to see? Tumour shrinkage, reduction in the number of tumours, you know, that sort of life-affirming thing. If the cancer responds to the treatment, then we continue it. if it hasn't, and there are no further spots, then surgery becomes a good course of action. If there are more spots, then we hit it with direct radiation.

Combine all this with the diet and the meditation and healing course, and, hopefully, exercise, then I am throwing everything I possibly can at it. Except for the coffee enemas. My surgeon advised me not to, or, as he said, "I'd prefer you didn't", and especially seeing I have a Frankenstein's Monster stitched up down inside there. The risks are just a teensy bit higher than normal.

And the only coffee I'm drinking at the moment is Dandelion Root coffee. It's not so bad. I notice I'm the only one in the house drinking it though.

Time to start squeezing that trigger...




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[info]karenmiller
2008-07-22 07:35 am UTC (link)
Your courage is inspiring, Paul. I hope you know how many hearts are fighting with you.

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[info]paulhaines
2008-10-09 09:44 pm UTC (link)
I reckon there is another paul haines out there that is not me! I'm not in NY. I know nothing about horses.

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[info]paulhaines
2008-10-09 09:50 pm UTC (link)
Um, and I have cancer, so I reckon I do know something about life.

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[info]chrisbarnes
2008-07-22 08:06 am UTC (link)
Well, not the miracle news we were all hoping for, but at least you've now got a plan of attack. Sorry to hear about the cost, though. (And the dandelion root coffee.)

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[info]taliehelene
2008-07-22 08:20 am UTC (link)
An extremely well reasoned plan of attack - get a-blazin' with the shooters!

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[info]angriest
2008-07-22 08:27 am UTC (link)
Would it be an affront if any of us started raising funds on your behalf for the $20,000? Not all of it obviously, but even a little might help.

I wanted to ask out front before thinking of any ideas in case you would rather people didn't do this.

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[info]paulhaines
2008-07-22 08:50 am UTC (link)
Definitely not an affront!

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[info]chrisbarnes
2008-07-22 08:59 am UTC (link)
Good idea. Keep us posted on arrangements.

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[info]halspacejock
2008-07-22 10:59 am UTC (link)
I was thinking the same thing, and lo and behold, when I checked the comments there was your suggestion.

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[info]paulhaines
2008-10-09 09:42 pm UTC (link)
I'm in Melbourne, but that would be fine! (dandelion coffee of course, as there is no caffiene and it detoxs my poor liver).

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[info]paulhaines
2008-10-09 09:49 pm UTC (link)
And you might have the wrong Paul Haines -- I just had several comments talking about stuff that I don't quite know about. I take it a Paul Haines was on tv in NY or something?

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(Anonymous)
2009-01-01 06:17 pm UTC (link)
i know there are a couple of "paul haines". what is your date of birth?

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[info]alinta_thornton
2008-07-22 09:07 am UTC (link)
Keep those bullets comin, padna.

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[info]benpayne
2008-07-22 10:09 am UTC (link)
Good to have a battle plan. Kick its arse.

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[info]benpeek
2008-07-22 10:32 am UTC (link)
good to hear you're not affronted. if you need people drinking that tea with you as well, btw, i nominate andy.

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[info]azhure
2008-07-22 11:08 am UTC (link)
At least you know what you're dealing with, and you have treatment available. I think Dad's oncologist talked about him trying that monoclonal antibody at one stage too - it sucks so much that it's not covered by medicare :( What sucks even worse is that I could make the damn thing for about $100 in a month in the lab.

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[info]rodneyjsmith
2008-07-22 12:20 pm UTC (link)
Looks like several people have beaten me to the punch, as I was thinking the same thing as I read your post.

I'd like to make what contribution I can, so shoot me an email or something with details of how best to get it to you...

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[info]ellen_datlow
2008-07-22 05:04 pm UTC (link)
Paul,
yes--please let us know how overseas people can also contribute...do you have a paypal account?

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(Anonymous)
2008-07-23 01:11 am UTC (link)
Bank account details, to my email address, *now*!

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(Anonymous)
2008-07-23 01:11 am UTC (link)
Bank account details, to my email address, *now*!

Lee Battersby

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Cousin Kate here ...
(Anonymous)
2008-07-23 09:35 am UTC (link)
Hello lovely, that's great you have a new plan of action! Also wonderful idea your friend had, if we all chip in a little.... we all want to help. I personally love that dandelion root coffee, but then I also like brussell sprouts :)Much love x

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[info]treehouseman
2008-07-24 04:28 am UTC (link)
What about Chickory coffee? Is that any good? Goddam expensive medicines. I'll be around with cash in small unmarked bills...

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(Anonymous)
2008-07-24 04:52 am UTC (link)
Paul, I haven't met you but I'm pretty sure I've seen you at cons. I'm quietly cheering for you and sending lovingkindness through the ether. May you be well and happy. May you feel safe and loved under these difficult circumstances. Oh, and may you learn to love dandelion coffee, too:-)

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[info]paulhaines
2008-07-24 05:19 am UTC (link)
thank you! I can do the dandelion root coffee, no probs.

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[info]anysia
2008-07-26 02:03 am UTC (link)
I will do what I can, as often as I can.

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[info]josie_pennicott
2008-09-19 12:52 am UTC (link)
Had to join this damn thing just to make a comment. Argh! took forever. I left a message for you on your Facebook, Paul. Tried to donate but the Paypal link doesn't seem to be working. Never fear, I'll return.
Keep firing xx

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[info]paulhaines
2008-09-26 04:27 am UTC (link)
thank you.

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